Health Update: A Day in Baltimore

Thank goodness for blogging. Its just way easier to explain the complicated-ness that is my life sometimes. We went to Johns Hopkins Thursday in Baltimore to get this whole process started. I saw the pulmonary HHT specialist. He ordered an echo on my chest just to make sure my lungs were clear of AVM's since my dad has them in his lungs. And since these are actually more dangerous than brain AVM's, especially through pregnancy and child birth. That wasn't a surprise to me though. The nurse made a call and they were able to get me in this afternoon. Thank goodness. Between all of the doctors appointments and tests there are like nine different appointments I will need. Cross this one off the list.

And let me just inject right here that Bryan thoroughly enjoyed himself during this visit. When the nurse first came in I was sitting at eye level with her because Bryan kept raising and raising the chair I was sitting in while I was trying to fill out paper work. She looked a little stunned! :)

After the pulmonary doctor was the ENT. Oh boy, was he fun. The nurse came in and sprayed numbing spray up my nose so the doctor could probe around my nose. I'm sure none of you have ever had the inside of your nose numbed. It's weird. I kept wiping it because it was running, but I couldn't feel it till it was on my upper lip. In the meantime Bryan found the light on the chair and was shining it in my eyes...right before he pushed some more buttons on the chair. This time I was laying back. That guy! I think he enjoyed himself so much because he never gets to go to the doctor like I do.  After this magic wand was inserted up my nose to explore the doctor left and my forehead started to itch. I looked down and I had a couple patches on my arms too. Wouldn't you know it. I was allergic to the numbing spray. Good grief. It's always something.

We had a couple hours until my echo so we headed that way and decided to grab something quick to eat on the way. We made it downtown to discover that the hospital was not in the best part of town. The best way to describe it is that there were inmates in orange jump suits with a guard picking up trash on the side of the road. And that guard with them didn't make me feel any safer. We made it to the Burger King, shoved our food down (not because we were hungry, but primarily for our safety) and headed down the road.

We went to the hospital then for the echo. The test took about an hour so Bryan found a pillow and tried to nap in the corner. I still have not heard the results. I am not expecting there to be any problems, but I should hear from them tomorrow.

After all of the poking and prodding we went down to Inner Harbor and had Cheesecake Factory on the river. So yummy. Browsed Barnes and Noble. Went up to the observatory deck 28 stories up and got to see Baltimore up close and personal. It was very cool. Then we walked around the mall and headed back to the Cheesecake Factory to get that cheesecake that our tummies had no room for earlier. One Oreo piece and one Snickers piece. Yum-O!!!

The day overall was great. Had the necessary tests and appointments. Nothing too emotional at this point. Got to spend the whole day with my husband. Got some sight seeing and good food in. Good day.

This is just the beginning of the whole process. Wednesday we will go back up to Baltimore to see the Nurse Practicioner about the upcoming angiogram, and we will be seeing the neurologist. We will then be out of town for the next week and a half. So when we get back I will go to an allergist because, of course, I am allergic to the dye they will use in the angiogram. Then we will have the angiogram. After that is when they will decide if I do have AVM's, if they want to treat them, and if they think it is safe for me to get pregnant.

In the meantime they have instructed us to stop trying for a baby. So we are on a baby break. Its so hard when the desire of my heart is to hold a little baby. My baby. But I do believe that God has protected me from getting pregnant these past two years because it is likely that I do have brain AVM's. So we are just waiting now. Waiting on the doctors, waiting on the tests, waiting on God. Not that it's easy but I have peace that this is the right thing to do right now. That helps. Today in church Pastor used an illustration about the Cape of Good Hope. It was originally named the Cape of Storms by the explorer who found it. He named it that due to the storms all around him on his journey. Then years later Vasco de Gama named it the Cape of Good Hope. He had a different perspective. He saw the hope in his journey. The end result. Making it to India. It really hit home with me. There is hope. The hope that one day God will give me baby. I know he will. But right now I have to wait. And not focus on the storms, but on the hope.

Thank you to all of you who are praying. So many of you have called or texted or emailed checking on me. I wanted to blog about this so I could answer all of your questions in as much detail as possible.